Journey Award Recipient
Jesse & Meghan Edberg found out in January 2020 that their son William has Angelman Syndrome. They have found ways to get him physical, occupational and speech therapy. They find every way possible to give William as typical of a life as possible. Their second son (Henry) is neurotypical and they do a great job of having both boys feel special. They are nominated for the Journey Award because they both work full time but are still doing a marvelous job of seeing that their boys enjoy all the world has to offer.
Jesse and Meghan put in day to day effort to make sure these boys have a full and typical life without letting Angelman Syndrome define their path. They are involved in the Angelman community helping other families, raising money for FAST and finding ways to help aid in the finding of a cure for this syndrome.
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